Disability rights and benefits
If you have experienced meningitis and/or septicaemia your life may have changed forever. If you are living with the after effects, or caring for someone affected, you may have to deal with any number of physical and mental disabilities. The after effects of meningitis and septicaemia can have an impact on your whole family, not just the person who had it. Adapting to this life change may be emotionally, physically and financially exhausting. There may be a lot for you to take on at this stage, so this document is here to help you navigate some of the resources, both financial as well as medical, that can go some way to making your lives easier.
It is not always possible to predict the outcome of these illnesses. That is why anyone who recovers from meningitis or septicaemia should have at least one follow-up appointment to look for evidence of any immediate or potential long-term complications, and resulting need for follow-up care. Some people have more subtle effects that can cause difficulties later on, and may need help from their GP or health visitor to access specialist care and rehabilitation services.
However, help is at hand! We may be able to answer your enquiry ourselves, or we can signpost you to the relevant professionals, agencies or organisations to assist with your specific needs. MRF also has over 15,000 Members and supporters with personal experience of the diseases. Many have first-hand experience of negotiating the benefits and services system as a result, and have shared information and advice with us.
This resource is for guidance only. Entitlement to benefits, services and equipment, and the providers of these and the laws governing entitlement to them can change. The need for these services is key when completing applications and assessments. This information was accurate at time of going to press in May 2010.
This resource applies to England only. If you live in another part of the UK or in Ireland then contact our 24 hour helpline.