A week later I had a follow up at the Acute clinic at LRI. The senior GP saw through me and said, “for a 24 year old you do not look well”. My kidneys were checked for infection but was all clear, she wanted to carry out further tests to see what was wrong. The following day I went into a coma, however I was weirdly in and out of consciousness. A lumbar puncture was carried out six days after I went to the acute clinic and as I was deteriorating, the infectious disease consultant had to especially come in on the weekend, as I was very serious and no one was aware of my condition. The neurologist carried out tests for me to show signs of alertness like pinching my toe nail and back of my shoulder, but no response.
I was then sent to intensive care, as my breathing was deteriorating, I was then tube fed, catheterised and pumped with ‘domestos’ as the ITU nurse described to my brother. A week after I went to the acute clinic I had woken up, my body had reacted to the TB medication, however I lost my speech, my sight was double, I had muscle loss and therefore I couldn't walk due to being bed bound for a long period in hospital. TB caused me to be really tired, I would sleep constantly and would get tired eating and talking.
The lumbar puncture result, MRI and the fact I reacted to the TB medication concluded it was TB that had affected the brain and caused meningitis. Weirdly I had no signs of TB elsewhere in my body. I was constantly X-rayed, had MRI’s and was CT scanned to see if the bacteria had spread.
TB in the brain is not contagious so it was a relief for the family, it can be caught by people coughing and sneezing so good hygiene is essential.
I then had a further two lumbar punctures to see if there was pressure in the brain. Normally brain pressure is 20CSF or below, however my first test was 35CSF and by my third lumbar puncture the pressure was 25CSF.
It took me three weeks after intensive care to be more confident in walking with the help of physio. Being tube fed also affected my bowels until the tube was removed and I felt more confident to go to the toilet.
The catheter was in for two months as I had gone into retention twice; it is weird how the bladder forgets how to release urine.
I was discharged from hospital after five weeks. I am currently on treatment for a year. For the first two months I took eight tablets a day, along with steroids, however I did have the medication intravenously for the first two weeks. The milligrams are very high but after two months the tablets drop to three a day. I cannot drink alcohol due to liver damage from the tablets and cannot wear contact lenses as one tablet causes the bodily fluid to turn orange.
With my families dedication, positive outlook and prayers I have recovered very well and I am lucky to re-gain my speech, writing, sight and I have no loss of hearing from some of the testimonials I have read. I however have vertigo and balance problems which will hopefully rectify in time.
Meningitis is a serious and life threatening condition, please be aware of the symptoms and save a life.
Dina Pancholi
September 2013