I had an episode at age 18 months, but had two further episodes before the cause was discovered. Apparently, I would tilt my head back and just scream in pain. Then vomit continually.
It took fifteen lumbar punctures and six months to diagnose that I was born with a Rathke's Cleft Cyst, a hole in the soft palate of the mouth/throat. This was allowing infections to enter the body, which resulted in meningitis.
The solution was a skin graft to close the hole, however, the operation caused damage to my Pituitary Gland and resulted in a delay of the onset of puberty and also fertility issues.
I am extremely grateful for the care given to me by the Medical team and feel so fortunate to have not suffered more serious complications.
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Anita Delandro
October 2024