Ellie Mae was on dialysis as her kidneys failed, and also life support as she was transferred to another hospital for life saving operations.
Ellie Mae survived this awful disease but not without cost. She has had 76 operations, lost both of her legs, her left arm, her bottom, the septum of her nose and part of her left ear; she also had to have a colostomy bag fitted. She has been skin grafted on every part of her body apart from a small space on her tummy. Her growth plates are deformed and she has no hip movement; her legs haven't grown since her illness. She is unable to sit down and so is constantly weight bearing through her legs, which puts immense pressure on her pelvis and her spine.